By Meghan Peterson
(April 16, 2023) — Recently, the Page family visited the nation’s capital to rally support for the New England Hemophilia chapter for the National Hemophilia Foundation’s “Washington Days.” Chris, Sarah, Ryder (18), and Waylon (11), of Haddam, met with representatives from U.S. Senator Richard Blumenthal’s office and U.S. Congressman Joe Courtney’s office to advocate awareness and resources for bleeding disorders.
As Chris and Sarah Page explain, “being able to travel to Washington on behalf of your community is a humbling experience. Knowing that you are…representing thousands makes you want to be your best self. The bleeding disorder community has given us so much that we can only hope to partially repay that by lending our voices to the process of getting the help needed for those affected. It was an honor to be chosen to represent our bleeding community for Connecticut. As a family we try to raise awareness for bleeding disorders, but this was a whole new level of activism! It was so cool to walk the halls and be in the rooms of the lawmakers, but even cooler to be lobbying for support of those laws being passed! We hope to get chosen to do this every year going forward.”